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Some are living in accommodation that is hazardous and of very poor quality. Even when families have a place to live that might be judged reasonable when general criteria are applied, it often does not have the space, layout and adaptations suitable for the needs of a disabled child, the carers and other family members. Disabled children are frequently precluded from participating in ordinary activities associated with childhood simply by the existence of physical barriers within their home environment (Oldman and Beresford 1998).

Babysitting, ‘child swaps’ and other informal systems of moral and practical support that prove crucial for many parents do not come their way so easily (Read 1991; Russell 1991). Such arrangements are often based on reciprocity and on participants having agreed needs and circumstances in common. The child who is viewed as markedly different and who sometimes has unusual needs to be met may not fit within the informal rules governing such arrangements. In addition, many people may feel uncomfortable with disabled children and uncertain as to whether they can offer them care.

Fathers and mothers also tend to undertake different types of caring tasks. The ongoing day-to-day care, particularly intimate personal care, most often falls to mothers, who, in addition, frequently undertake physical and practical tasks. Fathers tend to take on some of those practical and physical jobs that do not include personal care and assistance. They may also undertake tasks related to the children’s leisure activities from time to time or on a regular basis (Atkin 1992). As in many other families, mothers tend to take ultimate responsibility for orchestrating things that need to be done in relation to both the disabled child and other children and for attending to issues related to emotional and physical well-being.

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101 Dalmations - Rhyme Time


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